Treatments for HIE

At Together for HIE, we believe that treatment is a lifelong journey, not just a single event. It begins as early as possible, often within minutes of birth or injury, and evolves as your child grows. Our mission is to help you navigate the vast landscape of care, from evidence-based standards to the promising horizon of research, ensuring your child has every opportunity to reach their unique potential.

Regardless of the initial severity of the injury, children with HIE benefit from consistent, evidence-based support. Early intervention is more than just therapy; it is about harnessing neuroplasticity during the brain’s most critical growth phases.

The Pillars of Quality Care

• Tailored Approach: Every child has unique strengths. Goals should be meaningful, measurable, and specific to your child.

• Qualified Providers: We advocate for care delivered by licensed professionals with specialized training in pediatric brain injury.

• Collaborative Teams: A multidisciplinary team (PT, OT, SLP, and specialists) ensures your child is supported from every angle.

Services can be accessed through state-funded Early Intervention programs or private outpatient clinics. We are here to help you understand how to advocate for the best fit.

The science of HIE is moving faster than ever. Together for HIE is proud to be at the forefront, partnering with global researchers to bridge the gap between patient families and scientific advancement. We represent your voice in the lab and the clinic, from fetal research through adulthood.

Active Areas of Global Research

• Neuroprotective and Anti-inflammatory Drugs: Seeking to minimize secondary injury.

• Regenerative Medicine: Exploring how the body can repair and rebuild.

• Stem Cell Therapies: Investigating safe and effective ways to restore function.

• Novel Rehabilitation Tech: Using robotics and AI to enhance physical gains.

Stay engaged with the future of care by visiting our Clinical Trials and Research Hub to see active studies and how you can help shape future treatments.

In our most vulnerable moments, we all want a miracle. Unfortunately, many families in the HIE community are targeted by predatory marketing for alternative treatments that lack safety data or scientific rigor.

Together for HIE works closely with our Medical Advisory Board to help you distinguish between a breakthrough and a placebo effect. Our Hype or Hope series is designed to empower you with facts so you can protect your child’s health and your family’s financial security.

Red Flags to Watch For

• The Miracle Pitch: If it promises a cure or dramatic results with no clinical trial data, proceed with extreme caution.

• Financial Exploitation: Be wary of providers asking for tens of thousands of dollars out-of-pocket for unproven results.

• Scope of Practice: Practitioners like chiropractors or functional medicine providers are not qualified to treat complex neonatal or pediatric brain injuries.

We are here to combat misinformation. Before starting any new or trending treatment, we encourage you to consult your medical team and lean on our community for evidence-based resources.

We empower you with facts so you can make the safest decisions for your family.