Children affected by Hypoxic Ischemic Encephalopathy (HIE) need more than survival; they need early intervention, informed families, and health systems that can provide quality care from birth through childhood. Together for HIE works across three interconnected pillars to improve outcomes for babies and families affected by HIE.
Health Systems Strengthening
We believe every child affected by HIE deserves comprehensive, evidence-based care from diagnosis to long-term follow-up. Together for HIE works with hospitals, health providers, and government partners
Build capacity:
Training paediatricians, clinicians, nurses, and midwives in early diagnosis, emergency management, family-centered care, and developmental follow-up.
Expand Access to Treatment:
Advocating for therapeutic hypothermia (cooling therapy), the global standard of care, to be available in more hospitals.
Drive Data & Research:
Strengthening data collection and monitoring systems to guide policy, funding, and neonatal care improvements.
Engage in Policy Leadership:
Collaborating with governments to assess readiness, close resource gaps, and support quality improvement initiatives.
Supporting Families and Caregivers
Families facing HIE often feel isolated and overwhelmed. We ensure parents received the knowledge, emotional support, and connections they need to navigate their child’s journey. Our family support includes:
Early Intervention Education
Parent education from the moment of diagnosis.
Information Accessibility
Clear, accessible information resources on HIE and available services.
Peer Connection
Peer support groups that connect families with others who understand their experience.
Specialized Referrals
Referrals to specialized neurological, developmental, and psychosocial care.
Awareness Creation
Stigma and misinformation about HIE remain common in many communities. Together for HIE works to build informed, compassionate communities by:
Digital Outreach
Running social media campaigns that explain HIE and its causes.
Community Engagement Events
Organizing awareness events such as walks and runs.
Media Advocacy
Partnering with local media to discuss neonatal brain injury and family support.
Grassroots Education
Training Community Health Promoters to share accurate information at the grassroots level.